Upon returning from the Philippines, my dad decided not to go back to work due to his decrease in functional ability. This was a pretty devastating step but at the same time, we were thankful that he was able to know when it was time to stop. We had a bad "breathing" scare not too long after. The doctor assessed his breathing ability (which is the biggest indicator of lifespan) and it looked grim at first. He saw a Repirologist today who confirmed that he is at 73% of normal capacity and has not declined since August. Each new day is a gift, and every day that the symptoms don't worsen, we celebrate!
Since then, 4 of his siblings have been up to visit. The golden girls, Cleo, Fely and Rose made the long drive up for only a 1 day turn around a couple of weeks ago. Among the many highlights was my Aunt Cleo stir-frying dad's healthy breakfast cereal (concauted by Aunt Remie) thinking it was brown rice. She added the usual onions, soy sauce, etc. to OATMEAL and the best part was... she ate it! Bless her heart for not wanting to waste food! You have to find joy in the little things, right?
Last week Uncle Lope and his family were up and thank you to Les especially who has the wonderful gift of humor. I know he made him laugh hysterically on more than one occasion. Uncontrollable laughter is a symptom of ALS but we've unanimously decided it's our favorite symptom! Praise God for laughter.
This is a hard road that we're on. But as I was told by a very godly woman, you have to revel in those little moments of happiness that God brings your way. Otherwise, we're doomed to being a victim of circumstances.
Since then, 4 of his siblings have been up to visit. The golden girls, Cleo, Fely and Rose made the long drive up for only a 1 day turn around a couple of weeks ago. Among the many highlights was my Aunt Cleo stir-frying dad's healthy breakfast cereal (concauted by Aunt Remie) thinking it was brown rice. She added the usual onions, soy sauce, etc. to OATMEAL and the best part was... she ate it! Bless her heart for not wanting to waste food! You have to find joy in the little things, right?
Last week Uncle Lope and his family were up and thank you to Les especially who has the wonderful gift of humor. I know he made him laugh hysterically on more than one occasion. Uncontrollable laughter is a symptom of ALS but we've unanimously decided it's our favorite symptom! Praise God for laughter.
This is a hard road that we're on. But as I was told by a very godly woman, you have to revel in those little moments of happiness that God brings your way. Otherwise, we're doomed to being a victim of circumstances.
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