Wednesday, April 8, 2009

Not So Good News

We had been anticipating dad's appointment at the ALS Clinic today for the last few weeks. It has been evident that as time passes, the disease progresses at an even more alarming rate than before. Angela and her family were visiting for the last two weeks and she noticed just over the course of her visit, many rapid changes.

Today at the clinic, they assessed his breathing and it is at 51% (down from 59% in January) . Gravely, the average lifespan from this point on is 3-6 months. The doctor's say that sometime can outlive this timeline, but it's hard to say for sure. The disease can change very quickly as we've learned in the recent past.

There are hardly words right now. Though I had anticpated something like this, there is still no way to prepare yourself for the news. There are many things to lift up in prayer right now- end of life decisions, how to spend our time and our family. I have a special burden for Emily as she tries to make sense of this situation. Pray for her- that God would protect her during this time like He can and continue to draw her close to Himself. Pray for my mom, Kathy. She needs a supernatural strength right now. She's is tired and weary but I'm sure, still finding rest in the Lord.

We don't know... but He does.

We are looking forward to Betty's Run on June 14th. Please visit the website as we prepare to raise money and run our hearts out!


Barb said...

Love you Stoofie, i'm there for you, just call--love auntie Barb

Chantelle said...

Thinking and praying for you and all of your family. I pray that you all will stay close to the Lord in this time because I know it can be easy to be angry with Him and push Him away.

All the best with the run!

Shelley Kadatz said...

Hey Steph, Thanks so much for keeping us posted through these hard times. Know that Kendall and I are in prayer for you and your family.
Love you lots and give your mom a huge hug for me!!

Chris Adams said...

Praying continually for you all.

Chris Adams

Mydene Cuevas said...

I don't know if you remember our fam anymore (the Cuevases) because it's been years and years (back when we were all youths at SYC). I heard about your dad when we visited some friends in Calgary last month. You guys have been in my thoughts ever since and I have been praying for your dad and family. I pray that you would be fully surrounded in the strength, comfort and peace of Jesus. I will continue to lift you up in prayers.